Vulnerabilidade social e programática de pessoas com transtornos falciformes na Bahia

Abstract

Sickle cell disorders are the most common monogenic hereditary disease in Brazil, with predominance in afrodescendants, representing an important public health problem. This studyaims to analyze the dimensions of social and programmatic vulnerability of people with sickle cell disorders in the State of Bahia and the Cruz das Almas Health Region, in the period 2010-2020. With the results obtained, the scientific articleentitled:"Social and programmatic vulnerability of People with SickLeoness Disorders in Bahia" waselaborated. This is an ecological study, with a descriptive time series with data from the Notifiable Diseases Information System (SINAN) and mortality system (SIM), from 2010 to 2020. The indicators of morbidityand mortality were submitted to temporal trend analysis and descriptive statistics. 3,926 cases and 798 deaths from sickle cell disorders and 193 cases and 21 deathsfrom sickle cell disorders were reported in Bahia.A higher prevalence (P) of reported cases and Mortality Coefficient (CM) was observed in the Health Region (P=73/100,000 inhabitants; CM=7.9/100,000 inhabitants) when compared to Bahia (P=26.5/100,000 inhabitants; CM=5.4/100,000 inhabitants). Higher Lethality Rate (TL) and Presumable Mortality Rate (CMP) in Bahia (TL=20.33%; CMP=7.5/100,000 inhabitants) compared to the Region of Health (TL=10.9%; CMP 5.9/100,000 inhabitants). Women with less than 1 year of age, schooling corresponding to 4 to 11 years of schooling and higher than 12 years of schooling and brown and black race/color predominated in the reported cases. As for deaths, men predominated, aged20 to 29 years and 50 to 59 years, schooling corresponding to 0 to 3 years of schooling and mixed race/color, with the hospital as the place of death and access to medical care.The results confirm social and programmatic vulnerability experienced by these people and may direct health actions.