O percurso formativo de educandos que vivem com a doença falciforme

Abstract

Sickle cell disease (DF) is the most common genetic disease in human populations, in Brazil, the most prevalent. Bahia is the Brazilian State with the highest incidence of the Country and the Americas, particularly in the Recôncavo Region. The students who live with the DF have a high frequency of absences in classrooms, influencing their school life. Considering the high frequency of HbS in the State of Bahia; the high prevalence of SCD in the Bahia Recôncavo; and considering the health problems caused by the disease, it is questioned: How does DF influence the formative course of students living with this syndrome? This work aimed to identify the didactic-pedagogical actions carried out by the schools, due to the limitation in school attendance in relation to the students living with the DF. For that, a structured questionnaire was applied, with an exploratory character, which allowed the collection of data for quantitative analysis in the RStudio© program, from a population of students living with the DF. The analysis of the results showed that schools and teachers used two didactic-pedagogical actions in an incipient way. The total of 40% (08) of the students had support of these actions. It was notorious that the lack of didactic-pedagogical actions negatively influenced the formative course of these students. In the group supported by these actions, 62% (05) were approved, and in the group that did not have access to the actions, the approval percentage was 33% (04). The reasons that negatively affected the school attendance cited by students were: high frequency of tests, pain, medical consultations, performing various treatments, hospitalization and bullying. The age / grade distortion was 50% and school dropout 10% of the sample of the students who participated in the study. An important factor associated to success in the training course was the genotype associated with FD in this population.